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Brain Tumor Resources
The following list has been compiled through extensive research and information from each organization's website. In addition, we have personally reached out to every organization to verify the accuracy of the information. Unfortunately, not all organizations have responded.
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Even with those that are verified, please use your best judgement when making decisions about whom to work with, support, and donate to. Always do your own research before making a financial contribution.
Founded in 1973, the American Brain Tumor Association (ABTA) was the first national advocacy organization committed to funding brain tumor research and providing information and education to patients, caregivers, and their loved ones. For 50 years, the ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.
A brain tumor diagnosis can feel overwhelming. Whether you’re navigating watch-and-wait (WW), preparing for surgery, or adjusting to life post-treatment, the journey can often feel isolating. At Brain Tumor Companion (BTC), we’re here to help. Our weekly online peer support groups provide a welcoming space to connect with others who truly understand your experience.
The Brain Tumor Network, Inc. (BTN) is a nonprofit organization serving patients with primary brain tumors and their caregivers nationwide. Our multidisciplinary team includes clinical and social work navigators plus professionals in data, medical records, research, and operations. BTN provides free, individualized navigation so people facing a primary brain tumor can understand their options, overcome barriers, and access high-quality care aligned with their goals and values.
The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait.
brainstrust - a charity offering practical and emotional support to those given the devastating news that they have a brain tumour
Established in 2006, the CERN Foundation is now a designated program of the National Brain Tumor Society dedicated to improving the lives of those affected with ependymoma. Thanks to the efforts of an international network of collaborators, the CERN Foundation has been responsible for the publication of over 50 peer-reviewed papers in leading medical journals. This body of research has greatly advanced our understanding of ependymoma and has left a lasting legacy for future investigators to build upon.
The Ghana Brain Tumor Foundation (GBTF), founded in 2024, aims to be the leading association dedicated to funding brain tumor surgeries for underprivileged individuals and advancing cutting-edge surgical technology in the field of brain surgery within the Ghanaian community.
Beyond the physical and emotional distress that comes with a brain cancer diagnosis, the financial challenges can be significant. Love Goes Further grant recipients receive assistance with immediate expenses. This is offered along with gifts of comfort and encouragement designed to make waiting rooms and treatment days a bit more tolerable. These gifts come with our assurance to patients and families that they are not alone. They have a team behind them—our team. No matter how far we go our love goes further.
The Medulloblastoma Initiative (MBI) is a non-profit organization that raises and channels donations to accelerate research and develop a cure for pediatric medulloblastoma. Bringing together leading scientists worldwide, MBI fosters a transparent, synergistic, and silo-free research environment that enables faster progress toward a cure. In record time, two MBI-funded studies have been approved by the FDA, with one already advancing to patient recruitment and clinical testing — a testament to the urgency, collaboration, and innovation that define MBI’s mission, described by MIT as “a new playbook for curing rare childhood diseases.
The Musella Foundation for Brain Tumor Research & Information, Inc. is a 501(c)(3) nonprofit public charity devoted to empowering brain tumor patients and their families. We provide emotional and financial support, facilitate educational resources, advocate for patients' needs, and strive to raise funds for groundbreaking brain tumor research. Together, we aim to make a difference in the lives of those affected by brain tumors and contribute to the advancement of effective treatments.
As one of the world’s leading brain tumor centers, the Northwestern Medicine Malnati Brain Tumor Institute (MBTI) constantly working to develop and deliver the most advanced treatment options to patients across the Chicago area. Our experts offer brain and spine tumor care at Northwestern Memorial Hospital, nationally ranked in cancer, neurology and neurosurgery by U.S. News & World Report.
The Pediatric Brain Tumor Foundation® is committed to leading the way toward a future without childhood cancer. Because of supporters’ generosity, advocacy, and encouragement, thousands of families turn to us each year and find the resources and community support they need on their cancer journey.
StacheStrong is a 501(c)3 nonprofit devoted to raising funds and awareness for brain cancer research. Defeating brain cancer and improving the quality of patients’ lives is our daily focus. StacheStrong was started by two brothers following GJ’s diagnosis of Glioblastoma Multiforme (GBM). After a 25-month battle, he passed away in 2019 at only 30 years old. StacheStrong continues to fight in his memory and for all those facing a similar diagnosis.
Team Schladt Foundation is a 501(c)(3) nonprofit organization dedicated to spreading awareness of glioblastoma and other brain cancers; providing education, resources, and support for the brave warriors and their loved ones battling such diagnoses; and funding research to find new, life-changing treatments and ultimately a cure for glioblastoma.
The Ty Louis Campbell Foundation is a nonprofit organization that funds innovative research and clinical trials specifically geared toward the treatment of the most aggressive childhood cancers with a strong focus on brain tumors. Our mission is to help fund the intelligence and technology that will improve long-term survival rates and minimize side-effects for children diagnosed with the deadliest cancers, while helping to care for families when their child is in treatment by providing financial assistance and uplifting experiences.